Title: Special Projects Coordinator $55,800 - $80,000 / Posted thru: 9-15-19
Employee Name: TBD
Supervisor: Dominic Smith, Manager, Ge Genomics and Genetic Disorders Section
Purpose: The Special Projects Coordinator directs coordination and expansion of both the hemoglobinopathy quality improvement (HemQIP) and sudden cardiac death of the young (SCDY) programs for the Michigan Department of Health and Human Services (MDHHS), Lifecourse Epidemiology & Genomics Division (LEGD). The position is based in the Genomics and Genetic Disorders Section (GGDS) at MDHHS and works closely with other GGDS staff, Newborn Screening Program personnel, maternal child and chronic disease epidemiologists, Children’s Special Health Care Services, as well as partner agencies such as the Sickle Cell Disease Association of America – Michigan Chapter (SC (SCDAAMI) and clinics serving patients with hem hemoglobinopathies.
Duties and Responsibilities: • Assist with follow-up related to i infants with hemoglobinopathies detected t through newborn screening; and for other s statewide projects and grants relating to s sickle cell disease. • Support accomplishing initiatives to address prevention of SCDY in partnership with Michigan Alliance for Prevention of Sudden Cardiac Death of the Young (MAP-SCDY).
SCDY). • Must be highly motivated and c creative in searching for, proposing, and o obtaining grant and other types of funding t to support public health activities. • Provides leadership and administers daily daily operations of the Hemoglobinopathy Progr Program o Develops, implements and evaluates the the Hemoglobinopathy Program. o Continues implementation and eva evaluation of the MDHHS public health str strategic plan for sickle cell disease. o Maintains knowledge on sickle cell di disease and related hemoglobinopathies re regarding national treatment guidelines, new de developments and resources; serves as de department expert on sickle cell health is issues, trends and prevalence. o Participates in departmental i initiatives related to public health p programs for sickle cell disease; attends r relevant meetings with hospitals, clinics a and stakeholders to assure coordination with m maternal child health and chronic disease p programs. o Plans Hemoglobinopathy Quality Improvement Committee (HemQIC) meetings; pr prepares meeting summaries and related co correspondence. o Facilitates communication with M Michigan hematologists on research projects a and strategic plan activities as needed. o Collaborates with Children’s Special Health C Health Care Services (CSHCS) on development of inter of interventions to promote healthy transiti transition from pediatric to adult health care s care services. o Prepares reports, oral/poster presen presentations and manuscripts as relevant to share share program accomplishments. o Prepares IRB, medical research desig designation applications and data use agree agreements as needed, including renewals. o Represents MDHHS in loca local/state/national hemoglobinopathy/sickle cell cell initiatives and participates in rele relevant conferences and meetings. o Participates in national technical ass assistance calls, webinars, and regional mee meetings as needed. o Attends section, division and de departmental staff meetings o Performs other tasks as requested to e ensure successful completion of program o objectives. • Coordinates follow-up program a activities for newborn hemoglobinopathy s screening. o Serves as liaison and maintains communication between the Newborn Screening Follow-up Program and the contracted follow-up coordinating center (SCDAAMI); assists with contract management and development of work plan objectives o Monitors and suggests uses for follow up coordinating center (SCDAAMI); assists w with contract management and development of w work plan objectives o Monitors and suggests uses for follow-up data collected through the sickle c cell MCIR module, PerkinElmer or other d databases; oversees development and i implementation of the Michigan Care I Improvement Registry (MCIR) module f functions. • Oversees surveillance and coordination of long-term follow-up of indiv individuals with sickle cell disease. o Provides technical assistance to the SCDA SCDAAMI concerning collection of Health Stat Status Assessment data; coordinates timely data data entry and analysis. o Develops comprehensive surveillance and and health status assessment reports. o Oversees data collection and pr prepares federal progress reports for the Si Sickle Cell Treatment and Outcomes Research in in the Midwest (STORM) project. o Serve as liaison to SCDAAMI to a assist in meeting STORM goals. • Participate in Genomics and Genetic Di Disorders section initiatives to address pr prevention of sudden cardiac death of the yo young. o Acquire knowledge on underlying g genetic disorders that can lead to sudden c cardiac death of the young. o Participate in the MAP-SCDY and assist with accomplishing the group’s o objectives. o Plans MAP-SCDY meetings; prepares mee meeting summaries and related correspondence. o Prepare relevant reports, ed educational information and materials re regarding SCDY. o Sustain partnerships with i individuals and organizations concerned with s sudden cardiac death; and serve as a central r resource for professionals, families, a advocacy organizations and others. • Participate in education activities f for the public and providers. • Maintains a positive, strong, cred credible, professional and interpersonal rela relationship with all parties relevant of MPHI MPHI projects and represents the best inte interest of MPH at all times.
Education: Master’s degree in genetic couns counseling (MS), public health (MPH), nursi nursing (MSN), health services admin administration (MSA), social work (MSW) or anoth another relevant health related field.
Experience: Minimum two years as a project coo coordinator for a public health program or cli clinical service coordinator. Three years pre preferred.
Important Skills and Characteristics: • Must have knowledge of the newborn s screening process; personal experience or f familiarity with sickle cell disease and o other hemoglobinopathies, or willingness to l learn. • Ability to understand and interpret m medical articles relating to newborn s screening and hemoglobinopathies. • Familiarity with the Michigan Care I Improvement Registry, use of databases and s spreadsheets for data collection and r reporting. • Experience with survey methods and i instruments. • Experience with health education and o outreach methods. • Ability to develop new contacts and m maintain positive working relationships. • Ability to utilize knowledge to p provide consultation. • Ability to work with clinical p professionals and other state partners; t technical assistance and training to c clinical sites and SCDAA. • Ability to organize and develop g grant applications and progress reports. • Ability to prepare summary articles a and reports suitable for publication and/or p posting to program websites. • Excellent public speaking, data m management, organizational and writing s skills are essential to this position. • Ability to maintain records, prepare r reports, and correspondence. • Familiarity with emerging health i information exchange technology a plus. • MS Office software skills are es essential.
Work Environment and Physical Requirements: Standard office environment. Job may require moderate physical effort including lifting and transporting handout materials, laptop computer and projector, etc. Involves significant telephone and/or computer related activity including keyboarding and viewing a computer screen. Requires valid vehicle operator’s license and monthly travel to Detroit for consultation with SCDAA or other areas of the state for meetings with advisory committees, subcontractors and collaborators. Potential for occasional overnight stays and out-of-state travel to attend grantee meetings or conferences with federal project officers.
RESPONSIBILITY FOR THE WORK OF OTHERS: No assigned responsibility.
IMPACT ON PROJECTS, SERVICES AND OPERATIONS: This position plays a critical role in assuring successful implementation of the Hemoglobinopathy Program, including newborn screening hemoglobinopathy follow state travel to attend grantee meetings or conf conferences with federal project officers.
RESPONSIBILITY FOR THE WORK OF OTHERS: No as assigned responsibility.
IMPACT ON PROJECTS, SERVICES AND OPERATIONS: This position plays a critical role in assuring successful implementation of the Hemoglobinopathy Program, including newborn screening hemoglobinopathy follow-up; as well as a key role in implementing a long up; as well as a key role in implementing a long-term surveillance and follow-up program f for hemoglobinopathies that encompasses c continued collection of health status a assessment data and coordination of clinic p participation in federal grant activities.